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Flawed Pedigree: The Mosaic of DNA

I have Macular Degeneration. It is a part of my genetic make-up. It is my lineage. My father, his sister and my twin brother had early onset Macular Degeneration, Stargardt’s Disease in their late teens and early 20’s. I have lived all of my life surrounded by severely visually impaired people. I know their struggles, their feelings of depression, frustration, incompetence and alienation. There is no cure. At its worse state Macular Degeneration patients are given injections into their eyes (intravitreal) to impede the damage.

“Flawed Pedigree: The Mosaic of DNA” conceptualizes my lineage. It is a work in progress resulting in three chapters signifying each of the stages: my DNA, my emotional state, and my potential loss of vision.

Creating photographic sculptures intensifies the angst of my future. The preciseness to form each sculpture and the mathematical calculations and measurements amplifies the amount of obstacles I face as the disease progresses.

The series is a path to clarity, knowledge and acceptance.